Tuesday, March 10, 2009

Our Puppy Bailey

I almost forgot we pick up our new puppy today at 4:30 in Harrisburg at the airport. We well more like me, I think I am the most excited to get him he is a little pekingese just one day older than Briana's. We are calling him Bailey and he is going to keep me company while I'm stuck in the house till they figure out what's wrong with me. Now Bella has Shane, Toby has Bailey and Jordan has Keith and Louie so the three of us girls can just sit and chat. AS if that is something that would ever really happen. It will be more like the house will be a zoo with the 3 of us chasing the kids and the dogs while the guys have to sit in their offices lol. Better loud and noisy with laughter and things to look back on then dull and quiet with no memories to share later! Today is a good day!


Here he is my little Bailey Bird of Sunshine Valley....get it Bran?

Finding a new name for my blog

Well we got home from the clinic on Wed the 4th after driving straight through, I will never do that again it was insane! So the outcome of 11 days is that I'm having seizures they aren't sure what kind because I have the pacemaker in they couldn't do the MRI. So finally I have a diagnoses! The place is beautiful they believe in healing the mind body and soul, so they have the most beautiful artwork all over the clinic.

These are blown glass globes hanging from the ceiling they are just unbelievable to see the intricate work put into them.
These were all carved out of brass.


Then there were the times Nicole and Keith were bored to death while I was in being tested for hours at a time and they just took random pictures.


And of course we had to go see the Mall of America but of course I was to tired to even ride around the mall and Keith and Nicole were afraid of getting lost in it so we ended up driving there just to see the outside! lol Typical for us!
So now I'm home and my doctor's here don't agree with what the doctor's at the Mayo Clinic said because it means they misdiagnosed me having a mini stroke in 2005 so they don't want to give me the medicine for the seizures without further testing. So back to the hospital I go for a three day EEG while being taped so they can catch me actually passing out having a seizure. Can we say ready to knock someones head off! In the mean time I'm missing time with Bella and Bran and Louie when they came to visit because I slept through most of the weekend and I feel totally guilty about it so sorry Bran! The kids thought I'd be better when I came home and I'm still falling over so I feel like I let them down.
So back to my title I think it should be living life with the unknown. What do you think?



Monday, March 2, 2009

It's now Sunday night

I saw the Cardiologist and it's def. not my heart! So that finally clears up the heart issue once and for all. They ran a bunch of test and said other than they fact that I need the pacemaker to keep my heart beating well, so we can finally rule out the heart once and for all. We spent the whole weekend mostly stuck in the hotel room because Rochester is the mayo Clinic there isn't much to do. We saw the mall of America I guess unless you go inside it doesn't have the same effect. Tomorrow is the big day I see the Autonomic Specialist. So wish me luck and I'll let you know how it goes. Keep me in your prayers.

I was suppose to post this Friday sorry little late

Hi everyone just wanted to drop a quick note to let you know I'm doing ok. This place is amazing it's like a little city inside a city. The people could not be more helpful and friendly they do everything they can to try and put you at ease. I've had 6 tests done so far and passed out during two of them. Again during the tilt table test I passed out but they told me that got really good data whatever that means. They don't tell you anything. I had fat sucked out of my stomach they say aspirated they took two tubes I told them they could have it all they only wanted just the 2 tubes oh well I tried! I then went for a sweat test they put this yellow powder on you and put you in this box that only fits the gurney and they turn the temp up to 110 if you sweat the yellow powder turns purple well I looked like the one eyed purple people eater. The only place I don't sweat is the palms of my hands the bottom of my feet and my toes .I also had an EEG but I don't know how much they got from that because I was having one of those days where I just couldn't stay awake no matter how hard I tried. I look at it as at least I got someone to document how fatigued I get that I can't stay awake no matter what I do. So I don't know if that is going to have to be repeated. Today I go to the cardiologist so I don't know what kind of test he is going to order for me, As of right now they have my scheduled to be here till next Thurs. Longer than I thought and longer than Keith and Nicole have off. We are trying to see if we can move some of the test to like Monday when they don't have me scheduled for anything but I guess we'll have to see. I miss the boys like crazy I get to see Jordan every night because Kristyn and Deb have Skype but I haven't seen Shane at all. I'm kind of numb just going day to day test to test trying not to think of anything. Nicole has been having a hard time she misses the boys, her boyfriend and she worries a lot about me she see's how much the tests drain me. I think they are finding out some informatio n he re at least that's what it seems. I'll have to get Nicole to download some pictures so I can show you some of the artwork here it is just breath taking. Well that's it for now. I miss everyone, if you think of any questions I should ask let me know. Love to allDonnaps we are suppose to get 4 -8 inches of snow today and its suppose to go down to -9 yippie lol